Thursday, 28 August 2008

Ok so I'm always blabbing on about family, nights out and university so I thought I would tell you more about life on dialysis (that is the name of the blog after all!) I've probably told some of you this before, and showed you some of the links before but I'll post them again anyway.

First of all, here is a picture of me on dialysis! (ignore the chocy sticking out of my bag, its one of my weaknesses)

So I go for Haemodialysis or HD 3 times a week for 3 hours Monday, Wednesday and Friday on the twilight shift. I ring up the unit at around 3.30pm to see what time my machine will be ready as this sometimes varies. Mostly it is around 5.30 so I get to the unit at 5.15 as I have to take my blood pressure and weigh myself before going on the machine. I have to weigh myself because as well as cleaning the blood the dialysis machine also removes excess fluid, the amount of fluid removed depends on your dry weight. A dry weight is your weight without any excess fluid. Mine at the minute is 67kg. (1 kilogram = 1 litre of fluid) So if I go in at 68kg I would have to remove 1 litre of fluid and an extra 500mls of washback (that is saline used to wash the blood back after dialysis) so my total fluid removal would be 1500mls. This part of the process is called ultrafiltration and the amount varies from session to session usually on a Wednesday and Friday I would take off 2litres and on a Monday nearly 3litres due to the extra day of fluid because of the weekend. This is the reason that I am on such a strict fluid restriction of 500mls a day.

So here is a picture of where I weigh myself and take my blood pressure.

Heamodialysis consists of me having two needles (quite big ones) inserted into my fistula in my upper arm. They are a bit painful when they are inserted but during the dialysis session I can’t feel a thing. So a fistula is a surgically enlarged vein attached to an artery I have two scars where each needle is inserted (they aren’t inserted in exactly the same place every time, but not far off, causing quite big lumps on my arms). Heres a picture of one of the needles that is used.

I have to keep my arm very still during the dialysis session to ensure the needles stay in the right place. I think I’ve shown you this before but if you want to see how a fistula is made and used click here, it probably explains it better than me.

This provides access to the bloodstream for haemodialysis. The fistula buzzes all the time which is a good thing as this means the blood is flowing through it freely. One needle is to carry blood out of my arm and the other to carry blood back to me after.

So as well as removing fluid like I’ve already talked about, the machine’s main job is to remove toxins from my blood by cleaning it. While in the filtering system the blood flows through tubes made of a membrane that allows the waste products (which are much smaller than blood cells) to pass out through it. The waste products pass through the membrane into a dialysis solution (dialysate), then out of the machine. The "clean" blood is carried on through and returned safely to the body.

This happens over and over again throughout the dialysis session. Each time the "clean" blood is returned to the body, it picks up more waste products from the cells it circulates through, and brings these newly-collected toxins back to the dialyser (or artificial kidney – which is the white tube with the blue top and bottom on the picture) to be removed.

Fresh dialysate is passed through continuously to make the rate of the cleaning process as fast as possible.

Click here to see a picture of dialysis in action....

My machine is called Sneezy...

there are 6 beds at the unit, and 8 machines (2 spare) so they are named after snow white and each of the 7 dwarfs.

Here is a picture of the screen of my machine...

the information it shows is the amount of fluid I have removed up until that point, the time left on the machine, the amount of fluid I will take off by the end of the session and the rate it is being taken off (how much each hour) It also tells me how much blood is flowing through the machine at that moment, and how much blood has been cleaned altogether which could be over 50litres!!!

The grey round things are the pumps that spin and push the blood round, this can go at different speeds depending on the strength of your fistula and other factors. My pump speed is usually around 330, the highest I have gone is 350. The higher the pump speed the better the dialysis and the better my clearance which is how well I am dialyzing (mine is usually in the region of 70%) The machine also shows the pressure of the blood going into my arm by using a lights system, if the pressure gets too high or low the machine will beep. At the end of the dialysis session, the blood that is left in the tubes is washed back to me using saline, shown here...

So basically that’s dialysis in a nutshell. The main question I get asked is do you feel anything and does it hurt, the needles hurt a tiny bit going in but that’s it, I don’t feel a thing, I don’t feel the blood going in or out. I just sit back and let the machine do all the work I usually just watch the tele (all the soaps) whilst I’m on the machine and this passes the time. I would go to sleep if I could but there is constant hustle and bustle and machines beeping! The machine beeps if I accidentally lean on the tubes (containing the blood), if I move my arm by mistake or most importantly when the dialysis has finished.

So if you’ve got any other questions, just ask and I’ll do my best to explain.

Wednesday, 27 August 2008

Ok, so first things first... No baby news!!!! She is going for a routine hospital appointment tomorrow (she will be a week overdue then) so hopefully we'll know more then, maybe they will keep her in and induce her, who knows.

Seem to have had a busy few weeks really, can't pin point on things I have actually done. Met up with some friends and did some crafting (in anticipation of baby pictures.)

I also caught up with a friend I used to dialyse with Steph (who received her transplant a year ago) and one I still dialyse with, we went for a burger at Frankie and Bennys it was lovely!

On the dialysis front, nothing new really, had a few off days last week, vomitting and sickness but I'm lucky really, my really bad days are getting less and less as I get more and more used to dialysis I suppose. I have been good recently at taking my new tablets (Alucaps) and had my blood tests last night so hopefully it will show in them. I'm also counting down to my procedure on my arm (which is hurting today, for some reason!), the stent will be insterted under Local Anesthetic next Thursday and hopefully I'll be out within a few hours!

Thats it really, hopefully I'll be officially an Auntie soon and I will be able to announce the baby's name, which as yet no-one knows apart from Andy and Fiona!

I've decided that I have started talking more about family and friends rather than dialysis, so I'm going to take some pictures of the unit and talk you through my dialysis routine in my next post.... watch this space....

Monday, 11 August 2008

Hi, sorry I've been lazy in updating, thats because not much has happened in the world of Holly this week!

Me and the folks took Fiona out for lunch a couple of times to keep her occupied while we wait for the little bubs to make an appearance, think she is getting fed up waiting now, then again I think we all are. We also went out with her family for a meal together before the little one is born, this was a great laugh and I got to wear my new dress, YAY! I also them my final baby present which was a bib with "If you think I'm cute you should see my Auntie Holly!" written on it!

I've also been busy this week making scrapbooks to put pics of the baby in, they are coming along well and will be a great way of preserving memories for years to come!

I also ordered myself a new dell laptop in pink (obviously) so thats due to arrive on the 28th, well in time for my final year of uni!

On the dialysis front, nothing new really, I felt sick a couple of times during dialysis but I think this was due to me having a large lunch before my session, this seems to be a problem because I have to weigh myself before dialysis to calculate how much fluid I need to loose, this is done by taking my weight and then calculating the difference between that and my dry weight. So if I go in today and my weight is 68.9kg I would need to loose 2.4l (2400ml) as my dry weight is 67 and then an extra 500mls for the washback through the machine at then end of dialsys. However if I have had a big lunch the scales can't calculate what is food and what is fluid and so I may take off more fluid than necessary and obviously feel ill, may get cramps and have trouble getting my blood pressure at the end of the session.

However my latest bloods weren't too bad, my potassium had come down to 4point something, it needs to be under 5 as to much can cause heart problems. My clearence has gone up from 71% to 73% which is good news, as if it was decreasing I may need to put up the time I spend on dialysis! ( I'm one of 2 people in the unit that only do 3 hours)
The only problem with my blood is my phosphates (again) I like these Alucap tablets a lot more than other tabs and I have no probs in taking them, I just cant seem to remember to take them "every" time I eat!!! Also my calcium is still a tad high due to those other tablets I was on so hopefully by the next bloods this will have reduced.

So today I am off out for lunch with my folks, Fiona and Mum's friend who is over from Ireland (not decided if I'm going to eat yet, as I don't want to feel sick again on the machine later on.) I may still go along though as I don't want to miss out on any gossip!